IMG_0953
Snuck in a bike ride Wednesday afternoon: Charlie's face was more troubled than it had been for the past couple of days when he got off the bus. He said no to going into our apartment and yes to getting into the car and, as we were planning to go to our house to meet Jim anyways, he stayed outside while I ran up and down the stairs getting my stuff and sticking a load of laundry into the dryer. 

Once at the house, he got into one of his silly old things, putting old photos, CDs and DVDs, and the paper inserts from the CD and DVD cases into the crack at the top of the stairs. Charlie's been doing this for years. Originally, we tried to stop him but (live and learn) all of our efforts only led to him finding this activity even more fun, especially when I produced a pair of scissors and tried to pry out the photos. At this point, whoever gets the house after we finally sell it is going to have quite a treasure trove of wrinkled up photos of one (really cute) little boy, a stuffed Barney, and song lists for numerous Barney, Wiggles, and Beatles albums. 

Wednesday, after getting his fill of jamming up the crack on the stairs, Charlie was quite willing for a bike ride with Jim. Charlie is actually in need of a new bike: His knees are almost hitting the handlebars and he pedaled slowly, stopping at every driveway at one point. Charlie was waiting for people to wave him on—he understands that gesture. 

Charlie has had six peaceful days with Jim and me (well, some stuff at school) since last Thursday, when we took him off the Clonidine. Yesterday, standing at the sink, he smiled at me and said, 

"Hi!" 

And here's a very big hi to all of you—thank you for being out there.
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Comments
11 Responses to “”
  1. Emily says:

    Hi!
    I know our situation is not comparable, but I do remember the first time TH started to spontaneously note our existence or presence or entrance verbally. He still usually does not do it, but started occasionally doing it last year. It still startles me somewhat to hear that “natural” tone of voice in a greeting from him.

  2. Emma says:

    Hi! I nearly wrote a long response to your post “a little talk and a lot of pictures” on change, but restrained myself as I thought it may be considered spamming:-) (angelmans not being autism). I love hearing about Charlie’s communication, a simple “hi!” can mean so much.

  3. autismvox says:

    Hi! to everyone—
    @Emma, Maybe you could write what you were going to write up as a post on your own blog? Dora and I think of the focus of the change.org blog as disability more generally and we’re both very interested in communication, augmentative communication—–I read your post about the laminator and the wobbly board (yes, we watched that Wiggles DVD a lot in our day…..) and it was so familiar. I just took a whole bunch of photos of Charlie getting out of bed (very slow today) to make a morning schedule.
    @emily, I was really startled when Charlie spoke to me in, yes, that “natural” tone—hope you hear TH saying it a lot more.

  4. autismvox says:

    Hi! to everyone—
    @Emma, Maybe you could write what you were going to write up as a post on your own blog? Dora and I think of the focus of the change.org blog as disability more generally and we’re both very interested in communication, augmentative communication—–I read your post about the laminator and the wobbly board (yes, we watched that Wiggles DVD a lot in our day…..) and it was so familiar. I just took a whole bunch of photos of Charlie getting out of bed (very slow today) to make a morning schedule.
    @emily, I was really startled when Charlie spoke to me in, yes, that “natural” tone—hope you hear TH saying it a lot more.

  5. mom-nos says:

    There is a Chinese restaurant in Concord, NH that has a small Tinky Winky doll living in it’s walls, courtesy of Bud. I like to think of it as his love note to a future generation. Someday, someone will retrieve Charlie’s treasures and just IMAGINE the story they’ll piece together!

  6. autismvox says:

    omg! hope that Tinky Winky likes lo mein and wonton!

  7. Club 166 says:

    Even though the bike is a little small for Charlie, the seat is definitely a little too low (judging from the picture).
    Try raising it an inch. That should give him some more clearance in front of the handlebars, as well as make him more efficient pedaling.
    Joe

  8. autismvox says:

    Jim’s going to try to raise it but I think Charlie’s knees may hit the handlebars (his legs are really long). We’ve been thinking of getting Charlie a new bike.

  9. autismvox says:

    Jim’s going to try to raise it but I think Charlie’s knees may hit the handlebars (his legs are really long). We’ve been thinking of getting Charlie a new bike.

  10. Emily says:

    I’m reminded of that Michael Stipe/Natalie Merchant duet about finding an old photograph behind the wall and building a story around it.

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