our travels on the long road in autismland with our son Charlie
Episode on a New Jersey Island (or, why I never get around to reading novels these days)
(Cross-posted at We Go With Him) Waking from a long sleep has been known to render Charlie disoriented, out of sync. He woke at 7pm, wanted to go for a long bike ride on the Jersey horse trail, settled for a short one due to darkness, we thought we’d get his habitual burrito and then … Continue reading
A Lot Can Happen In a Little Bit of Time
The best way to describe Monday is through a timeline. 4am. Charlie wakes up. Showers, etc. 4.25am. Charlie asks for a walk. Jim suggests a bike ride; I point out that it is kind of early. I set this Giant Timer app on Charlie’s iPad—it is simplex elegans, a giant digital timer with neon chartreuse … Continue reading
Pretty Okay: Few Words, Lots to Translate
Charlie woke up at 5.20am, showered, and came down the stairs exuberantly. It was ‘no’ to a walk and then he went to get his socks. Jim brought up the possibility of a bike ride; I pointed out that it was a bit early. Charlie (now besocked) returned back down the stairs and we asked … Continue reading
Arrivals & Departures
My plane landed early in Newark Airport. Jim and Charlie and my parents had gone to Liberty State Park to ride bikes in what was bike ride #3 of the day: Jim had mentioned that Saturday I was coming home, whereupon Charlie started saying ‘Mom airplane’ and asking to go there right now that instant. … Continue reading
That Was Then, This Is Now
Charlie did good at school, as his teacher emailed me and Jim noted. He took the bus home and then wanted my dad to sit in the front seat of the black car. It was another instance of Charlie having some idea, some image, in mind about how things should be when my dad and … Continue reading
Each and Every Moment
Clearly I need to work on Charlie and me standing next to each other (as in days gone past). In looking over my posts, I seem to have been posting photos of Charlie riding his bike, and Charlie getting ready to ride his bike, and Charlie riding his bike with Jim, and Charlie riding his … Continue reading
The Purple Beads Story (on video)
Thank you to everyone for your good wishes about finding Charlie’s purple beads. Alas, the beads have yet to be found. As a result of which, Charlie and I didn’t set off for the Big Autism Center till 8.44am. School starts at 8.45am so we were a bit late. Charlie had gotten up, showered, and … Continue reading
More Choices: When Beads Are Lost and Not Found
It was only after I uploaded today's 'daily (Charlie) photo' into my blogging platform that I saw, just to his left, the words on the advertisement: MORE CHOICES Something that Charlie could always use a few more of, whether in regard to expanding the foods he'll eat or the direction he'll ride his bike, or … Continue reading
Backseat Driver
Monday morning I was trying out a new route to drive Charlie to school that, Jim reported, had taken them a mere 34 minutes on Friday. We indeed zipped along for the first 20 minutes then, after getting onto a state highway lined with commercial establishments and chain stores of every possible kind, we sat. … Continue reading
18 Miles On the Bikes At the Beach
I can't remember the last time that we, who are very much a 'beachy' family, went to the beach. (It was a couple of weeks ago at the end of August; good thing I write this blog so I can just look it up, right?) We got so into traveling to trails and other places … Continue reading
We Go With Him by kristina chew 
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